A window into Miranda's world
I hope you find my blog helpful, encouraging and valuable. This is my journey with Pityriasis Rubra Pilaris (PRP).
Friday, March 4, 2016
Sunday, May 24, 2015
Lotions & Potions: What helps my dry skin, hair and lips.
I know everyone has various levels of dryness with this crazy disease so I hope this helps you like it has me!
BODY: I use Olio di Argan Shower gel with pure Argan Oil. I allow my skin to air dry and then I apply baby oil. Allowing your skin to air dry helps keep your bodies natural oils. I also alternate using baby oil (stronger) and sesame seed oil (weaker) depending on how much moisture I feel my skin needs. If I need extra moisture throughout the day I use Eucerine Cream or Cetaphil Cream. The creams last longer than a lotion on my skin. I also exfoliate as needed using the Clarisonic Plus with the body attachment.
HAIR & SCALP: I use Agadir Argan Oil shampoo and conditioner (sulfate free). When needed I use a deep repair mask by hi.pro.pac (Moroccan mend Argan oil).
LIPS: I use Aquaphor Lip Therapy by Eucerine. Aquaphor is my life saver!!
FACE: I wash my face with Fresh Soy Face Cleanser and I apply Murad Invisiblur Perfecting Shield SPF 30. I also stopped wearing all makeup.
EYES: Systane Ultra High Performance lubricant eye drops.
NOSE: Sterile Saline Nasal Mist or Simply Saline Nasal Mist
I have tried so many different products over the last 8 months and these products have been my best of the best. I really hope this will help you too. I hope anyone with dry skin, eyes or nose can benefit from this post.
Thursday, April 30, 2015
Sick of being sick... April 29, 2015
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Pictures of progress April 29, 2015
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Wednesday, April 1, 2015
Pictures April 1, 2015
My toenails and cuticles have gotten worse.
Week Two on Absorica (Acutane) - March 30, 2015
Wow!! I can't believe how great my skin looks. Only two weeks on this medicine and my skin looks amazing. I have had more side effects this week then last. Unfortunately the side effects I had last week have not gone away and I've only added to the list. this week my scalp became very dry and it looks like I have dandruff. I also have extremely dry skin around my eyebrows, nose, lips and chin. I have also started to have peeling between the webbing of my fingers. My hands and feet have began to swell, and are painful. Another new side effect is that I have learned if I do not eat enough food I will become very nauseous and throw up. Unfortunately, my poor toenails and lips have gotten worse. The worst side effect of all would be the shingles on my right cheek. I went to the doctor this morning to have it cultured. She said she is unsure if the shingles is actually a side effect from the medicine. She said she thinks it's because my immune system is so low right now.
I did received some very awesome news today. My doctor told me that I will be able to take this medicine for 6 months and try to decrease the dosage overtime. She said that we would continue at the 60 milligrams I'm on now for the next 6 months. Then I will be able to lower my dose to 40 milligrams for one month. Then lower it to 20 milligrams for one month, so on and so on. The only way that she will stop lowering the dose is if my disease comes back. She said the worst case scenario is that I would have to go back on the medicine. I am so so so happy to hear this news!!! I honestly thought I would have to be on this medicine for the full 3 years. I did not know how my body could handle such torture. I can honestly say that I would take all the side effects this medicine has given me in exchange for my disease. It is all worth it! I thank God everyday that he has blessed me with strength and healing.
Pictures March 20, 2015
I now have the first spot on my face :(
A close up of my left arm. All of the redness and irritation is gone! You can even see some of the scars have faded drastically!
A close up of my left leg, the biopsy sites have completely healed. (The two large red spots) Also look at how much better it is, the redness and irritation is all gone!
My right arm.
My left arm.
This is a picture to show you the redness that comes and goes. I pushed my thumb on my chest to show you the difference. It's so crazy how hot I get.
This is how I look on week one.
My poor chapped lips :(